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HomeMy WebLinkAboutBack-Up DocumentsAbout Us We're here to transform the lives of people affected by neuromuscular disease. MDA History MDA's legacy of progress has always started with families at the heart of all we do. For more than 65 years, we have been committed to saving and improving the lives of kids and adults living with muscular dystrophy and related life -threatening diseases. We are proud of our rich history and grateful to the dedicated families and supporters who have made today's progress possible. The victories of our past will lead to tomorrow's treatments and cures. How MDA Started In June 1950, Paul Cohen, a prominent New York business leader living with muscular dystrophy, invited a group of individuals to meet in his Rye, New York, office. Each had a personal connection to muscular dystrophy, and the gathering focused on the urgent need to raise funds to advance research seeking treatments and cures for muscular dystrophy. The group — so vested in the fight against neuromuscular diseases — formed the organization that became the Muscular Dystrophy Association. That year, MDA's first research grant for $1,500 was awarded to neuromuscular disease pioneer Ade. T. Milhorat, M.D. Celebrities & Our Historic Telethon MDA Families in the Spotlight One of MDA's first goals when it started in 1950 was to recruit celebrities who could help promote the newly created Muscular Dystrophy Association to the American public. Founder Paul Cohen met with renowned comedians and entertainers Dean Martin and Jerry Lewis to urge them to become champions for the cause. They agreed. On Dec. 28, 1951, Martin and Lewis concluded their popular NBC network television show with a special appeal to support muscular dystrophy research. The comedic duo made a second national appeal the following month during its Jan. 4, 1952, network radio program. Early to recognize the power of television to bolster awareness and raise income for MDA, Cohen pioneered the establishment of local telethons featuring a variety of stars to raise money. Thanks to early hosting commitments from top stars, including Robert Alda, Dick Van Dyke, Captain Video and Virginia Graham, MDA successfully broadcast five local telethons in two years. The MDA Telethon Begins On June 29-30, 1956, Martin and Lewis co -hosted their first MDA telethon from New York City's famed Carnegie Hall. Jerry Lewis hosted subsequent telethons in 1957 and 1959. In 1966, the first MDA Jerry Lewis Labor Day Telethon was broadcast by a single station in New York (WNEW-TV). The telecast was so successful that MDA selected Labor Day weekend for all future telethons. Then, with help from broadcasting icons Sylvester "Pat" Weaver and Robert M. Bennett, MDA created a "Love Network" of stations that in 1971 facilitated the nation's first networked telethon. Throughout the decades, the legendary Labor Day broadcast originated from different locations including New York, Las Vegas and Hollywood. The most successful fundraising event in the history of television, the show, with Lewis as its iconic host and with help from a legion of top celebrities and entertainers, raised nearly $2 billion during the years. Thanks to unwavering public support of MDA's research and service programs through the telethon, pledges and other fundraising efforts, MDA became the first nonprofit organization to receive a Lifetime Achievement Award from the American Medical Association "for significant and lasting contributions to the health and welfare of humanity." Biggest Names in Show Business Show Their Support appeared on the MDA telethon, including: Alan Alda, Jason Alexander, Woody Allen, Jack Benny, Milton Berle, Carol Burnett, Richard Burton, Johnny Carson, Johnny Cash, Billy Crystal, Doris Day, Robert DeNiro, Patty Duke, Jimmy Fallon, Don Francisco of "Sabado Gigante," Jackie Gleason, Whoopi Goldberg, Woody Harrelson, Neil Patrick Harris, Larry King, Burt Lancaster, Jack Lemmon, Howie Mandel, Dr. Phil McGraw, Eddie Murphy, Bob Newhart, Paul Newman, Rosie O'Donnell, Gregory Peck, Regis Philbin, Ray Romano, Mickey Rooney, Adam Sandler, Jerry Seinfeld, William Shatner, Martin Short, Ed Sullivan, Barbara Walters, Betty White, Robin Williams and Oprah Winfrey. Consider musical acts, too, and it's easy to see why the telethon is so much a part of American history. The telethon audience has enjoyed thousands of hit performances by a diverse range of artists, including: Alabama, Count Basie, The Bee Gees, Tony Bennett, Clint Black, Jon Bon Jovi, Garth Brooks, Mariah Carey, Ray Charles, Cher, Kenny Chesney, Chicago, Phil Collins, The Commodores, Perry Como, Sammy Davis Jr., Gloria Estefan, Aretha Franklin, Josh Groban, Faith Hill, Enrique Iglesias, Julio Iglesias, Alan Jackson, The Jackson 5, Billy Joel, Elton John, Quincy Jones, Tom Jones, KISS, Eartha Kitt, Cyndi Lauper, John Lennon, Tracy Lawrence, Paul McCartney, Reba McEntire, Tim McGraw, John Mellencamp, Willie Nelson, Oak Ridge Boys, Donny and Marie Osmond, Dolly Parton, Tom Petty, Queen, Debbie Reynolds, LeAnn Rimes, Kid Rock, Kenny Rogers, Carlos Santana, Spice Girls, Ringo Starr, Rolling Stones, Sugarland, Randy Travis, Tina Turner, Eddie Van Halen, Clay Walker, Dionne Warwick, Stevie Wonder and Wynonna. Even the King of Pop, Michael Jackson, Paula Abdul, American Authors, Backstreet Boys, Luke Bryan, Carole King, Kenny Loggins, Bret Michaels, Pitbull, Rascal Flatts, Darius Rucker, Ryan Seacrest, Carrie Underwood, will.i.am. and many others performed on the MDA Telethon. Despite the many celebrities that graced the telethon stage, some of the most riveting telethon moments came from courageous individuals and families taking the stage. From MDA National Goodwill Ambassadors, including Ben Teraberry, Mike Neufeldt, Kelly Mahoney, Ben Cumbo, Sarah Schwegel, Mattie Stepanek, Luke Christie, Abbey Umali, Bryson Foster and Reagan Imhoff; to other families sharing how MDA makes concrete differences in their lives; to MDA-funded researchers and clinicians describing why public support of MDA is so vital. A big part of the telethon's success was letting people speak from the heart about the importance of the fight against muscular dystrophy and related diseases. The End of an Era On May 16, 2011, Jerry Lewis announced his retirement as host of the annual MDA Labor Day Telethon. MDA will be forever grateful to Jerry Lewis, a world -class humanitarian, for his indefatigable and inspiring work on behalf of kids and families with neuromuscular diseases, and for the countless dollars his commitment helped raise for critical research and services. Throughout the decades, the broadcast industry evolved, bringing major changes in demographics and viewer habits, as well as rising production costs for live televised events. That meant the telethon needed to evolve too. In 2011, the 21%-hour show was streamlined to a more viewer friendly six -hour format. The following year, the show was streamlined further as a three-hour prime -time broadcast special that included performances and celebrity appearances from Hollywood, Nashville and New York. It also proudly featured a new name, the MDA Show of Strength Telethon. In 2013 and 2014, the MDA Show of Strength Telethon became a two-hour entertainment -packed event carried exclusively on the ABC Television Network. The Show of Strength conveyed the same message of hope and progress as always while reaching out to younger viewers and supporters to strengthen MDA's mission going forward. On May 1, 2015, MDA made the difficult decision to end its historic telethon tradition. After careful consideration and analysis and as families and supporters began looking for new ways to support and get involved with the organization, MDA once again evolved with the times to create new opportunities through social media and other digital channels to inspire the nation in support of the fight against muscular dystrophy. Watch classic telethon footage on the MDA Telethon YouTube channel. Transforming Lives MDA is committed to transforming the lives of people affected by muscular dystrophy, ALS and related neuromuscular diseases through innovations in science and innovations in care. As the largest source of funding for neuromuscular disease research outside of the federal government, MDA has committed more than $1 billion since our inception to accelerate the discovery of therapies and cures. Research we have supported is directly linked to life -changing therapies across multiple neuromuscular diseases. MDA's MOVR is the first and only data hub that aggregates clinical, genetic and patient reported data for multiple neuromuscular diseases to improve health outcomes and accelerate drug development. MDA supports the largest network of multidisciplinary clinics providing best in class care at more than 150 of the nation's top medical institutions. Our Resource Center serves the community with one-on-one specialized support, and we offer educational conferences, events, and materials for families and healthcare providers. Each year thousands of children and young adults learn vital life skills and gain independence at summer camp and through recreational programs, at no cost to families. Pioneering Partners In the early 1950s, several important sponsors became long-standing allies of MDA, including the Tall Cedars of Lebanon of North America, the National Association of Letter Carriers (NALC) and the International Association of Fire Fighters (IAFF). The NALC quickly established a nationwide door-to-door campaign for MDA and continues to support MDA as a national sponsor today. In the same time frame, a group of families affected by muscular dystrophy approached Local 718 fire station in Boston to ask professional fire fighters to help fight muscular dystrophy. Responding enthusiastically, the fire fighters took to the streets with their boots in hand to ask greater Boston to make donations that would be used to fight muscular dystrophy. The Fill the Boot campaign was an instant success, with the IAFF membership passing a resolution to support MDA's fight against muscular dystrophy until treatments and cures are found. More than 60 years later, IAFF continues its tradition as the top fundraising organization for MDA today, raising more than $26 million each year to help MDA families live longer and grow stronger. � TreasuryR��mwmmum."""w"rwm OGDEN UT 8420I-0029 MUSCULAR DYSTROPHY ASSOCIATION % 8TEPHEN P EVANS VP FINANCE 6400 E GRANT QD STE 170 TUCSON AZ 85715-3800 In reply refer to: 4077987774 Mar, 20v 2018 LTR 4188C O 13-1885552 UUODOO DD 00024798 BODC: TE Employer ID Number: 15-1885552 Form 990 required: Yes � Dear Taxpayer: | This is in response to your request dated Jan, 22, 2018, regarding � your tax-exempt status. | We issued you a determination letter in July 1952" recognizing you as tax-exempt under Internal Revenue Code (IRC) Section 501(c) (3). Our records also indicate you're not a private foundation as defined under IRC Section 509(a) because you're described in IRC Sections 509[a](1) and 170(b)(1)(4)(vi). Donors can deduct contributions they make to you as provided in IRC Section 170. You're also qualified to receive tax deductible bequests, legacies, devises, transfers" or gifts under IRC Sections 2055, 2108^ and 2522. In the heading of this letter, we indicated whether you must file an annual information return. If a return is required, you must film Form 990, 990-EZ, 990-N, or 990-PF by the 15th day of the fifth month after the end of your annual accounting period. IRC Section 8033(j) provides that, if you dnn,t file arequired annual information return or notice for three consecutive years, your exempt status will be automatically revoked on the filing due date of the third required return or notice. For tax forms, instructions, and publications, visit www.irs.gov or call 1-800-TAX-FORM [1-800-829-3878]. If you have questions, naII 1-877-029-5500 between 8 a.m. and 5 p.m., local time, Monday through Friday (Alaska and Hawaii follow Pacific Time). MUSCULAR DYSTROPHY ASSOCIATION STEPHEN P EVANS VP FINANCE 6400 E GRANT RD STE 170 TUCSON AZ 85715-3800 4077967774 Mar. 20, 2018 LTR 4168C 0 13-1665552 000000 00 00024799 Sincerely yours, tct Q�C el-- • 6��3 rzieL Stephen A. Martin Director, EO Rulings & Agreements 02-01-' 19 11 :05 FROM- T-860 P0001 /0001 F-963 Form w-9 (Rev, December 2014) Department of the Treasury Internal Revenue Service Request for Taxpayer Identification Number and Certification Give Form to the requester. Do not send to the IRS. 1 Name (as shown on your incO1Yie tax return). Name is required on this line; do not leave this line blank, Muscular Dystrophy Association, Inc. 2 Business nameldisregarded entity name, if different from above 3 Check appropriate box for federal tax classification; check only one of the following seven boxes: ❑ Individual/sole proprietor or i] C Corporation it S Corporation ❑ Partnership ❑ Trust/estate single -member LLC ❑ Limited liability company. Enter the tax Classification (C.,C corporation, $_$ Corporation, P=partnership) ► Note_ For a single -member LLC that is disregarded. do not check LLC; check the appropriate box in the line above for the tax classification of the single -member owner. P. ❑ Other (see instructions) 4 exemptions (codes apply only to certain entities, not individuals; see instructions on page 3); Exempt payee code (if any) 5 Exemption from FATCA reporting code (if any) +CCWnin mern,a7n0 the v.3} 5 Address (number, street, and apt. or suite no.) 222 South Riverside Plaza, Suite 1 500 6 City, state. and ZIP code Chicago, IL 60606-6000 Requester's name and address (optional) 7 List account number(s) here (optional) Taxpayer Identification Number (TIN} Enter your TIN in the appropriate box. The TIN provided must match the name given on line 1 to avoid backup withholding. For individuals, this is generally your social security number (SSN). However, for a resident alien, sole proprietor, or disregarded entity. see the Part I instructions on page 3. For other entities, it is your employer identification number (EIN). If you do not have a number, see Now to get a TIN on page 3. Note. If the account is in more than one name, see the instructions for line 1 and the chart on page 4 for guidelines on whose number to enter. Social security number or Employer identification number 3 6 6 5 5 5 2 Certification Under penalties of perjury, I certify that: 1. The number shown on this form is my correct taxpayer identification number (or I am waiting for a number to be issued to me): and 2. I am not subject to backup withholding because; (a) I am exempt from backup withholding, ar (b) I have not been notified by the Internal Revenue Service (IRS) that I am subject to backup withholding as a result of a failure 10 report all interest or dividends, or (c) the IRS has notified me that I am no longer subject to backup withholding; and 3. i arn'a U.S. citizen or other U,S. person (defined below): and 4, The FATCA code(s) entered on this form (if any) indicating that I am exempt from FATCA reporting is correct, Certification instructions. You must cross out item 2 above if you have been notified by the IRS that you are currently subject to backup withholding because you have failed to report all interest and dividends on your tax return. For real estate transactions, item 2 does not apply. For mortgage interest paid, acquisition or abandonment of secured property, cancellation of debt, contributions to an individual retirement arrangement (IRA), and generally, payments other than interest and dividends, you are not required to sign the certification, but you must provide your correct TIN. Sea the irr truCti0na SignMere on page 3. Signature of I4r.k U.S. person ► General Instructions Section references are to the Internal Revenue Code unless otherwise noted. Future developments. Information about (teueloprnenta affecting Form W-9 (such as legislation enacted after we release it) is at wWw.irs.90v/fW9, Purpose of Form An individual or entity (Form W-9 requester) who is required to file an information return with the IRS must obtain your correct taxpayer identification number (TIN) which may be your social security number (SSN), individual taxpayer identification number (ITN), adoption Taxpayer identiliCation number (ATIN), or employer identification number (EIN), to report on an information return the amount paid to you, or other amount reportable on an information return. examples of information returns include, but are not limited to, the following: • Form 1099-INT (interest earned or paid) • Form 1099-DIV (dividends, including those from stocks or mutual funds) • Form 1099-MISC (Various types of income. prizes, awards, or gross proceeds) • Form 1099-B (stock or mutual fund sales and certain other transactions by brokers) • Form 1099-5 (proceeds from real estate tranSaCtiOns) • Form 1099-K (merchant card and third party network transactions) Date • Form 1098 (home mortgage interest), 1098-E (student loan interest), 1098-T (tuition) • Form 1099-C (canceled debt) • form 1099-A (acquisition or abandonm,ent of secured property) Use Form W-9 only if you are a U.S. person (including a resident alien), to provide your correct TIN. !f you do not relum Form W-9 to the requester with a TIN, you might be subject to backup withholding. Sea What is backup withhofding7 on page 2. By signing the filled -out form, you: 1. Certify that the TIN you are giving is correct (or you are waiting tor a number to be issued), 2. Certify that you are not subject to backup withholding, or 3. Claim exemption from backup withholding if you are a U.S. exempt payee. If applicable, you are also certifying that as a U.S. person. your allocable share of any partnership income from a U.S. trade or business is not subject to the withholding tax on foreign partners' share of effectively connected income, and 4. Certify that FATCA codes) entered on this form (if any) indicating that you are exempt from the FATCA reportin, 3g correct. See What is FATCAreporting? on page 2 for further information. Cat. No. 10231X Form W-9 (Rev. 12-2014)